Friday, June 27, 2008

Coming Soon...

If you were to review all the historical posts on this blog... you would complete the task in about 3 minutes. That is because in order to review historical posts... there must be posts in the first place.

We will post more. We want to post more. We need to post more.

I am posting tonight as Julie is next door scrapbooking (at least that is where she says she is). I am committing us to write more often in this space not only for our friends, family and new 1p36 extended family... but for us! Julie is right, it is therapeutic to write and tell people about our sweet Lily. We both enjoy it... it's just the whole 3 other kids, laundry, breakfast, lunch, dinner, lawn, job, school, baseball, softball, soccer, grocery shopping, yadda, yadda, yadda-thing gets in the way.

Well... no more excuses. We need to be sharing the joys we have with Lily with everyone. She deserves it. We deserve it. Thus... from now on, you will see more posts! And more pictures of Lily cakes.

(Pretty easy for me to commit not only myself to writing more but commit Julie as well huh!? Well... that's what happens when you leave me alone with all 4 kids for your scrapbooking! Take that!)

We have a lot of ground to cover to catch-up on all the amazing things that have occurred with Lily and in our lives since our initial posts. We had Lily's first birthday, her first swim in the pool, the amazing progress she is making with her PT, OT, RD and ST, her new sunglasses, her chewing on pretzel sticks... and so much more.

They might be short in length, but they will be long in meaning and love. We hope you enjoy reading them as much as we will enjoy writing them.


God's Plan & Welcome to Holland

It's funny how sometimes it takes awhile for things to sink in... to process information... to understand why God dealt you the hand he did.

Each and every day Julie and I think about why God chose us to be the caregivers of our beautiful Lily. I don't understand it. Why us? Why not someone more capable, holy and worthy of such a gift? Obviously he chose us for a reason. Obviously he has a plan for us and Lily. We don't understand it... but we are honored to be her parents and thank him everyday for giving us her.

She is the most lovable and sweet baby I have ever met (and we have 3 other pretty darn sweet ones). I still have no idea what our future has in store for us on this journey with Lily... I just know that Julie and I will love and care for her unconditionally for the rest of her life.

We read a children's book to our kiddos called "God Gave Us You". That book inspired the URL of this blog. We will never understand God's Plan for us, but he dealt us this hand for a reason. We will make the best of it.

Below is a reading a friend of mine with a Special Needs child passed along to me when we learned of Lily's diagnosis. The goof-ball I am... I did not read it until tonight. It had an impact on me. I thought I would post it here for others to enjoy.

(BTW... the capable, holy and worthy reference above applies exclusively to me. Anyone who knows us realizes Julie is there but wonders about the knucklehead she married.)


Emily Perl Kingsley.
c1987 by Emily Perl Kingsley. All rights reserved

I am often asked to describe the experience of raising a child with a disability - to try to help people who have not shared that unique experience to understand it, to imagine how it would feel. It's like this......

When you're going to have a baby, it's like planning a fabulous vacation trip - to Italy. You buy a bunch of guide books and make your wonderful plans. The Coliseum. The Michelangelo David. The gondolas in Venice. You may learn some handy phrases in Italian. It's all very exciting.

After months of eager anticipation, the day finally arrives. You pack your bags and off you go. Several hours later, the plane lands. The stewardess comes in and says, "Welcome to Holland."

"Holland?!?" you say. "What do you mean Holland??
I signed up for Italy! I'm supposed to be in Italy. All my life I've dreamed of going to Italy."

But there's been a change in the flight plan.
They've landed in Holland and there you must stay.

The important thing is that they haven't taken you to a horrible, disgusting, filthy place, full of pestilence, famine and disease. It's just a different place.

So you must go out and buy new guide books. And you must learn a whole new language. And you will meet a whole new group of people you would never have met.

It's just a different place. It's slower-paced than Italy, less flashy than Italy. But after you've been there for a while and you catch your breath, you look around.... and you begin to notice that Holland has windmills....and Holland has tulips. Holland even has Rembrandts.

But everyone you know is busy coming and going from Italy... and they're all bragging about what a wonderful time they had there. And for the rest of your life, you will say "Yes, that's where I was supposed to go. That's what I had planned."

And the pain of that will never, ever, ever, ever go away... because the loss of that dream is a very very significant loss.

But... if you spend your life mourning the fact that you didn't get to Italy, you may never be free to enjoy the very special, the very lovely things ... about Holland.