Sunday, July 26, 2009

1p36 Movie Night Fundraiser is a BIG Success!!

A huge thanks to everyone who participated in our 1st annual 1p36 Annual Movie & BBQ Fundraiser! It was a great success and very fun! We had 133 people RSVP to the Evite - it was a huge party!

There was quite the crowd in our yard. Matt Lutz, our neighbor donated his bounce house, Jason's company-GetWellNetwork donated the money for the food and Monkey Joe's donated a free Bounce House party for one of our lucky guests! Thank you to all of our sponsors!

We started off the night with hot dogs, popcorn, lemonade and a big jumpy! The kids all loved it. Once it got dark, Jason set up his movie screen, we passed out movie size candy bars and everyone settled in to watch "Bolt" on the big screen! We even had a round of late night hot dogs.

We made almost $2000 in one night! In addition to our fundraiser - we have received numerous donations from many other family and friends including people from Jason's company. The generosity and support of all our friends, family, neighbors and co-workers continues to warm our hearts. We are very blessed to know each and every one of you.

The money raised will help fund the 3rd Annual 1p36 Conference that is being held in Indianapolis - next week on July 31, August 1 and 2. We are very excited to see all of our 1p36 family again and meet many new friends. We are continuing to raise money for both the conference and the brand new 1p36 organization that is forming.

For those interested in donating online via PayPal - please go to:

1p36 Deletion & Support Awareness Fundraiser Paypal Link


Gavin Ross said...

Amazing-way to go guys! See you at the conference!

Geneveive, Gavin and Zoe

Anonymous said...

It was a pleasure meeting Lilly and your entire family at the recent 1p36 conference. Lilly is doing so well and is an absolute doll!!!! You guys did an outstanding job organizing this very important weekend. The speakers were fantastic and we left with a great deal of knowledge. Hope to see you at the next 1p36 conference. Again, a great job!!!

Diana & Denny Bush
Alayna DeKeyrel's Grandparents

Tammy HIllis said...

Me and my husband just recently had a baby boy in July and found out he has 1p36 deletion syndrome. He is 6 weeks old and we spent a month in children's hospital in Arkansas. Just thought it would be nice to get to talk to someone that is going through the same thing. My e-mail is Thank you and God Bless!

Taysmommy said...

Hi! My name is Jennifer Ruhland and I have a 7yr old daughter named Taylin with 1p36 and I've recently been looking up information about it.I had no idea they had confrences and such for children and families.She been diagnosed with 1p36 for about 5 years now and it has been a challenge but she has brought joy to so many peoples lives and I thank God every day that he thought I was special enough to care for someone like her.Anyway I have felt so alone in all this.Everyone I talk to about her syndrome has never even heard of 1p36 including the doctors.So I was just wondering if someone had any info or advice they could give me,I would be forever greatful.My e-mail address is Jennifer Ruhland